Monday, 2 September 2019

Extension

Huge day tomorrow. Will the Johnson lies be finally stopped and the country taken off the brink of no deal Brexit? Or even if Parliament votes for an extension, which will be legally binding on him, will he choose instead to break the law and ignore the will of MPs?

I'm so sick of the way this Government is choosing to interpret what "leave the EU" actually means. He lies when he states there is progress on the negotiation. I watched the statements with Merkel and she did not agree that the Withdrawal Agreement could be opened. She just said that there was existing provision for alternative arrangements to replace the backstop when and if it is finally agreed that they will actually work. Despite his lies that there is progress the EU states categorically that there is not and that he has not presented what these so-called alternative arrangements will look like.

Yet he needs to claim there is progress as the only defence he has against removing the threat of no-deal.

There is no progress.

And let me state again, I have specific requirements for medication following my transplant, which is at risk if there is a no deal.

The sooner this nasty party is consigned to history the better.




Wednesday, 28 August 2019

Constitutional outrage

He's been in office barely  month and Johnson has shown complete disregard to parliamentary democracy. Today he announced that he intends to prorogue parliament in a naked attempt to suppress the debating time of the House where it might otherwise seek to block a no deal.

I cannot begin to describe the contempt I feel for this man, if not this government.

Kidney is still very sleepy and my eGFR is still only 22. My creatinine is still 276, with only a slow decline. Still better than being on dialysis though.

Friday, 26 July 2019

Transplant!

It finally happened. Two weeks ago now. I took at call in the early hours of Friday morning to say that there was an available kidney. The operation seems to have gone well - my creatinine is falling and I feel great!

eGFR is currently 12 and rising.

As usual the NHS was completely amazing. The nurses were brilliant and really looked after me. Night times on the ward were more of a challenge (I need absolute quiet to sleep) and I was a little uncomfortable at first with the pain.

Most of the swelling has subsided, and I am without the catheter and drain line now. Only a catheter between the new kidney and my bladder remains for a couple more weeks. That will not be a pleasant experience to remove it!

And all this against the change from a May to a Johnson government. He has 98 days to deliver an impossible Brexit. We shall see what happens, but I am not confident that he will achieve any kind of deal. And if there is no deal then Parliament has made it clear that it will do everything it can to block it.

Interesting times.

Thursday, 27 June 2019

They don't know who I am

Tonight I am bleeding profusely with a hematuria. I feel light headed. I have an appointment tomorrow at the hospital. Just my luck that the warmest day of the year is about to hit us this weekend but I might be in hospital.

I slept when I returned from the GP this afternoon. I've eaten but feel nauseous. Three weeks of bleeding has taken its toll. I have no energy.

I have no energy to update my Twitter account. After three years of fighting Brexit I am tired. It looks highly likely that Boris Johnson will be elected to the position of PM by the Conservative Party members. The decision is out of my control. He looks likely to push through a Brexit by 31st October by whatever means, even if that means proroguing Parliament. We'll see about that. For now I just need to sit back and watch this pantomime play out. I still don't think Brexit will happen. I am just too tired now to fight it anymore.

And my family - those who ignored me, who chose to believe in this ludicrous endgame we have followed, they can continue to believe in it. It's actually more than not forgiving them for voting Brexit. They don't even know who I am. That is unforgivable.

Monday, 24 June 2019

Counting down the days

And so we are now in the Tory leadership campaign, down to the final two: Johnson or Hunt. Rory would have been good, but common sense was never going to prevail here. Last week a poll of the Tory membership revealed that they would rather break up the United Kingdom as a price to pay for Brexit. So it is confirmed - they are fanatical.

I am at the stage now that it doesnt matter who wins. Both are chasing unicorns. Hunt is probably more of a statesman, but he also says that he would pursue a no-deal Brexit if it came to it.

The world has gone mad. And this weekend the news of strange noises coming out of the 31 year old's Camberwell flat where Boris is shacked up. Where have the standards gone?

Received another offer of a kidney: a 30 year old group with a history of cocaine and steroid abuse. I would have accepted but it wasn't a tissue match in the end.

Hematuria has lasted over a fortnight. Went to the doctor's about it. They took a sample. But what can they do?

Only seven more years until my planned retirement. I'm starting to count down the days. 

Tuesday, 4 June 2019

Trump

I just can't, even.

And a dozen contenders for the job of PM. With Boris as the favourite and endorsed by el President.

Will the NHS really be on the table with an trade negotiation?

The State Visit is almost over. Last night we were treated to footage of the Trump family meeting the Queen for dinner. After that tweet aimed at Mayor Khan.

The demonstration outside Parliament was fake news apparently. At least the blimp was there.

Meanwhile I received a call today from my surgery, advising that my phosphate binders have been put on the "red list" and that they can only now be dispensed by the hospital.

In good news my consultant advised that I can take 2 days off from dialysis, every so often. So I'm hoping we can go to France for a short trip.

Friday, 24 May 2019

Resignation day?

Today might be the day that Theresa May resigns. But then I have thought that on many other previous occasions.
This time it is more likely. After the extension to Article 50 was granted earlier in the year, she has done very little to unite the party. Worse still (for the Conservatives) it has proved impossible to prevent the European Elections from taking place. In the chaos of that Nigel Farage has established the Brexit Party from nothing which looks like it has stormed ahead to win most of the seats. Interestingly though, so too have the Lib Dems, overtaking Labour and leaving the Conservatives languishing in single figures.
And amidst all that May tried to return her WA a final time in the form of a Bill into the House of Commons. This has proved the death knoll for her. The backlash has successfully killed it off and the 1922 Committee are pretty much forcing her out.
We await an announcement this morning to see if she will cling on until 10th June after the D-Day commemorations and Trump's state visit.
In my view the best thing she could do now would be to unilaterally revoke Article 50 and reset everything for the next PM to start again. And who will that be? Will it really be Boris? What can he do with the mathematics of Parliament - call another election? Would he dare?