Wednesday, 1 January 2020

New year musings

For three weeks I have had nothing to say. But for the new year, the new decade, I wanted to put some thoughts down, about my own existence if nothing else. My existence. What it means to be me. What I think about me. Where me is going.

A new year is always a time for reflection. What plans there might be for the next 12 months. 2019 was a pretty dramatic year for me. My politics has been shattered, just like my family relationships, my mental health, and more physically the operation I had in July, something that has turned around my outlook on life somewhat.

My physical illness and my mental illness have been somewhat entwined, with the one feeding the other. Like a wounded animal, I cut myself away from the world, my family, my career, my ambition as I weathered my decline. But now I am through that, at least physically, and at least for now. Who knows how long my transplant will keep going for. It isn't a perfect fix after all, but it is enough.

So I do have ambition, but in order to realise this I need to address my lingering frustrations. My career has plateaued and I can see the end point no the horizon. Yet in order to extract myself from this path I need to be able to see an alternate route. That is still lost in the fog. This is the same fog that has shrouded my thinking for years, sometimes lifting to provide clarity but then enveloping again and incapacitating my vision.

I want to move on but I need to know where. I look at the stars but they are too small to make out between them. I want to extend my intellect, that is clear. I don't feel clever any more. Perhaps I was never clever, I was just good at faking it. That is certainly the case now. To hide my ignorance I become obscure and distant, so that people cannot identify the real me. I keep myself isolated. I am a loner. I prefer my own company than any tedious drinks party or bourgeois dinner party. I enjoy theatre, Becket in particular, but anything cerebral. Maybe I am pretending to myself of my intellectual superiority, when I am incapable of demonstrating it to others any more. I am insular to the point of seeming weird.

But what is weird? I need to own weird. It is the only interesting thing about me. My backstory is the usual pained youth story, from a broken home, coping with the psychologically damaging stepfather who eventually goes off the rails, my mother only justifying her remaining with him for 25 years by the fact that they produced a son, the wonderful can-do-no-wrong kind, who clearly holds the same gene. That's a gene that has impacted my family since 1983, blood line or not. But is that weird, or just normal family dysfunction?

What it has lead to is my insularity. Like a gradual tightening over the years. Not that I was very outgoing at school, but then that was when family life was at its worst. At university I avoided the Students Union on a Friday night because it was always just drunken and dull, preferring to sneak off to the local gay bars where I was far more likely to find myself. In my year in France I chose an area that was unpopular with the other British students, opting to live with French students. I was probably my most open there, but even then I regressed to isolation on some weekends, preferring the solitary to the busy.

Then my working life began, without ambition I opted for a low paid role in a bookshop in my university town, using the ambition of my then boyfriend to travel to pin myself to him wherever he went, first to Ethiopia where we worked in a Mother Theresa home in Addis Ababa and then by an overland trip to Australia. I've often been known to us my Trans-Siberian train journey story as a foil to show that there is something interesting about me, but its a bit fraudulent when it has always been chance and circumstance that has pushed me onto new experiences.

In Australia I did enjoy a moment of self-awareness when I taught myself to code professionally, yearning to return to the UK where I could throw some energy into my career. Travel was good to me for that reason: it let me identify what I was missing out on: a job and the London property market. I soon made up for that by throwing myself into my career, then saving up for my first property, then saving up for my first pension. Then saving up for a future I had no idea about.

I think its since my recent health concern that this has brought in some light to the question of what future I am living for. I remain isolated: the thread of my dysfunctional family has followed me for over 30 years and I am at the stage where I am considering whether it is of benefit to me anymore. My operation has once again brought me some self awareness. And energy. Energy is good. It fuels motivation and passion. But does it identify which star in the sky to aim for?

So I think I have some ambition but still no focus. One thing I can do is to put this down into words. Like Becket says, we can be pessimistic about the futility of life between birth and death, or we can fill it with words, talking none stop until we finally fill in the void and there is nothing else left to say.

Let's see what words I can fill into 2020. Let's see if I find my direction.





































Wednesday, 11 December 2019

General Election 2019

In 24 hours from now the country will have a good idea on which party has the biggest chance of forming the next Government. I hope with all my heart that it is not the Conservative Party.

I used to vote Conservative. I was proud to be a pro-business, pro-EU, pro-aspiration voter. Not any more. Since 2016 the Conservatives have swung so far to the right that there is no way I can vote for them tomorrow. And the lies they have told, with this deluded belief that they need to out-Brexit the Brexit Party.

Boris Johnson has no integrity. Neither do many in his Cabinet, I hope that the results tomorrow will be a blood bath for them. The polls are tight but it is still possible that there will be a hung parliament. That is what we need right now - some moderate politics that can guide this country away from the abyss. Boris Johnson is not the man to represent the country.

I am a bit scared for tomorrow, but I have a small feeling that the polls are closing in on Boris Johnson. Tomorrow I think that people will vote for anything but the Tories. Whether tactical voting is successful or not will be part of that story.

I am so fed up with politics right now. I'm fed up with Brexit, But that doesn't mean that I am prepared to waive through a Withdrawal Agreement that has not had proper scrutiny. This is what Johnson is hoping to do. Before the election was called Parliament refused to accept the shortened timescale for debating the Withdrawal Bill. So Johnson tried to call for the election. I am still a bit annoyed that an election was called at all, but I believe in democracy and I know that in the end this will be work itself out.

We have come a long way since that terrible year, 2016, when people who didn't have any opinion at all about Brexit suddenly decided to pin all their domestic woes on the EU. Fed by the lies and deceit of Brexiteers it was always going to be inevitable that manipulated electorate would vote for something that had been barely explained in full. Now that the full ramifications of leaving the EU are in the open, there is only disinformation (and there has been a lot of it) by the Tory spin doctor in chief, Mr Cummings, that can once again engineer a result to suit them. I just hope that truth and integrity prevails tomorrow. It is the last chance we have to stop Brexit.

Wednesday, 30 October 2019

Do or Die

Tonight was supposed to be the last night before we left the European Union. The famous Halloween Brexit, drummed into the country through television advertising, social media and no-doubt email spamming (hopefully only for those who had opted in for such nonsense), has mysteriously come to a juddering halt. The minting of the 50p celebratory coins has stopped. All money wasted. Johnson said he would rather "die in a ditch" than not fulfill his promise to leave the EU on 31st October.

He has failed.

He has failed because Brexit is impossible to achieve. Instead he has insisted on an election. Another election to mix up the Parliamentary mathematics with a last gasp hope that he might win a large enough majority to have another go. It is also a convenient smokescreen, to distract the public who really should be asking where the ditch is and why is he not lying in it.

So in about six weeks, on 12th December, we face a General Election. On my work Christmas Party night of all days. I await with interest to see if we get yet another hung Parliament. Lots of MPs are already quitting whilst they are ahead but there are also plenty of Brexit fanatics that I hope will face humiliation on Friday 13th December.

What a nice Christmas present that would be.

Friday, 27 September 2019

Momentous

What a time to be alive. After reducing my anti-rejection medication my creatinine made a significant fall this week. So pleased that the return to a decent eGFR has recommenced again. I just need to fix the CMV infection I have contracted from the donated kidney and will be sorted. My liver is still causing me problems though and the cysts on it are impeding on my stomach, causing me reflux. I have an appointment at Kings next week to address that.

This week the Supreme Court deemed that Johnson had broken the law regarding prorogation. What an outcome! So Parliament was duly resumed. Hopefully MPs can continue to hold this corrupt Government to account and maintain our democracy.

This week I also spoke to my manager about returning to work. I feel a little guilty as there has just been a major release, which I missed. I just need to meet with Occupational Health next week and set a date for returning.

Wednesday, 18 September 2019

Set back

Bit of a set back this week - my creatinine stopped falling completely and was actually slightly raised. Also my new kidney appears to have a bit of hydro-nephrosis. On top of that my Tac levels are a bit too high. It's a bit of a balancing act to keep them right but that could be what is impacting my creatinine levels. Received a call from the surgeon today to reduce my levels even more and they are bringing forward my appointment to Monday next week.

Spent most of yesterday watching the proceedings in the Supreme Court where the Government is defending their position on prorogation. Tomorrow we will hear from John Major's lawyers. So it will be true blue-on-blue PM-on-PM. How has it got to this?

Johnson heckled again on a hospital visit. He really is not very popular with the people.

Finally the Lib Dems are offering a true alternative for Remainers by promising to revoke Article 50 if they win the next election. That is quite unlikely but it is a great incentive for Remainers to put an end to this sorry affair. Looks like Corbyn has missed the boat.

The drone bombing on Saudi oil refineries looks about the escalate. 

Monday, 2 September 2019

Extension

Huge day tomorrow. Will the Johnson lies be finally stopped and the country taken off the brink of no deal Brexit? Or even if Parliament votes for an extension, which will be legally binding on him, will he choose instead to break the law and ignore the will of MPs?

I'm so sick of the way this Government is choosing to interpret what "leave the EU" actually means. He lies when he states there is progress on the negotiation. I watched the statements with Merkel and she did not agree that the Withdrawal Agreement could be opened. She just said that there was existing provision for alternative arrangements to replace the backstop when and if it is finally agreed that they will actually work. Despite his lies that there is progress the EU states categorically that there is not and that he has not presented what these so-called alternative arrangements will look like.

Yet he needs to claim there is progress as the only defence he has against removing the threat of no-deal.

There is no progress.

And let me state again, I have specific requirements for medication following my transplant, which is at risk if there is a no deal.

The sooner this nasty party is consigned to history the better.




Wednesday, 28 August 2019

Constitutional outrage

He's been in office barely  month and Johnson has shown complete disregard to parliamentary democracy. Today he announced that he intends to prorogue parliament in a naked attempt to suppress the debating time of the House where it might otherwise seek to block a no deal.

I cannot begin to describe the contempt I feel for this man, if not this government.

Kidney is still very sleepy and my eGFR is still only 22. My creatinine is still 276, with only a slow decline. Still better than being on dialysis though.