This week was not a good kidney week. After seeing my consultant and the surgeon, we calculated a rate of 24 months before I might require dialysis. I think the NHS are manipulating me into finding a living donor, as by me going on the transplant list I will also need to wait a minimum of 24 months to find a deceased donor. Go do the sums. I understand why they are doing this, why they didn't put me on the transplant list last year where I would in most probability have avoided dialysis. It just isn't fair. Well life is not fair. Suck it up.
Then later in the week I received a call from Guys to tell me that my eGFR had declined from 15 to 13. This is important as it puts me much nearer to the 10 mark, when I might need to go on dialysis. In theory it could get to 8 but I am not taking any chances. So now I have to come in for an additional appointment to go through the motions for that.
So now I am really looking at living donors. It's what the NHS wants and it is what I want. It just freaks me out to have to discuss this with friends and family. If I find one, this nightmare could all be over in a month or so.
Yesterday I started feeling quite dizzy and came home early from work. I think it might be the increased medication to try to reduce my blood pressure. That really rounded off the week for me.
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